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Anyone been prescribed Ohtuvayre (new med)? Your experience?
COPD: Chronic obstructive pulmonary disease | Last Active: 1 day ago | Replies (103)Comment receiving replies
Used ohtuvayre for 13 days Almost immediately my sleep was affected (would sleep for 2 - 3 hours, then unable to resume deep sleep). I also began to notice anxiety and significant depression. There were two occasions in the second week of treatment when I became extremely short of breath immediately after the treatment. I also noticed an increase in SOB. I stopped using it and my mood and sleep improved almost immediately. My SOB is also less and I'm back to my pre-ohtuvayre baseline. So disappointed, was hoping this would make a real difference.
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I am up against the ropes with it as well, been on it since Dec on and off, had to stop after several days in Dec then had to go in and get a steroid shot to be able to breathe... Since then I start up now and then, one single daily treatment every-other-day or so to keep gathering data on myself, and am at the point again right now that i can't hardly walk to the kitchen without having to stand there for a minute to catch up. Frustrating. I have been combining it with Trelegy 200 taken about 4 hours apart and tried it without Trelegy the last 2 days, and I am about seized up again, dang it. I quit the Trelegy temporarily because I was starting to get the idea that combo was a bad idea. ..So, trying another approach, I stopped the Ohtuvayre after yesterday morning and today I am coming out of it somewhat with just a dose of Trelegy 200. ...QUESTION : What about combining Ohtuvayre with Tiotropium as the Ensifentrine trials that I just read suggested gave a measurable gain as an add-on treatment? Anyone try that combination ? Thanks