← Return to Reclast - Please share your positive experiences

Discussion
Comment receiving replies
@mmourton

I am 73 and I received my first infusion of Reclast on Mar. 24, 2025. I was tired and achy that night, which I had been told to expect but was fine the next morning. That evening while washing my face I noticed my left eye hurt slightly behind my eyeball. I had never had that feeling before. I did not connect the infusion with this as I had not been told this was a possible but rare side effect; nor had I read that in any of my research. The pain and swelling got worse over the next 3 days. The arthritis center where I had the infusion told me to go to emergency. It was Friday and I called my opthalmologist for an appointment for Mon. Over that weekend, it got much worse, so much so that I went to the emergency on Sunday. I told them that I thought it was from the infusion but the ER doctor decided it was an allergic reaction and prescribed me a antihistamine and a stomach pill, both of which I was already on if they had bothered to read my medications. When I went to the opthalmologist the following day, my left eye was completely swollen shut. I again told him I thought it was a side effect of the infusion. He didn't say it was or wasn't from the infusion but was concerned there might be something else going on, such as a tumor. He directed me to get a CAT scan the following morning. It did not show any mass. I was prescribed 40 mg. Prednisone for 7 days, Prednisolone AC 1% drops-1 drop 2x per day, sodium chloride eye ointment--3x day along with Pantoprazole 40 mg ( in case the steroid upset my stomach). After seeing another eye doctor at Cleveland Clinic, and taking every test for possible infection, they both conceded that my reaction was a response to the infusion. It is now almost 3 weeks out from the infusion and my vision is still adversely affected in the right eye. I have not yet had a follow up with the infusion doctor or the eye doctors, but the eye doctors that I previously saw recommended that I not continue the infusions. I do not plan to.

Jump to this post


Replies to "I am 73 and I received my first infusion of Reclast on Mar. 24, 2025. I..."

I had a Reclast Infusion 4/1/25 and I have been feeling poorly since and today is 4/13. I got the pain in the left eyeball and thought m head was going to explode the day after infusion. I too saw eye doc and he did not see that I needed steroid drops. The pain finally subsided but it went to back of neck & shoulder . Then it went from there after 3 days into my right jaw where I had teeth removed (I was on Prolia and used oral surgeon one year before). It has subsided after 3 days. I’m better today but still feel crummy. Pain has subsided🤞I am a long term chronic pain patient on pain meds as well. I will tell you I had to use six Tylenol 500 mg each for two days and least two 500 mg since the infusion with normal pain meds. This morning I woke up headache free and yesterday. I’m hoping I can do a little housework starting tomorrow. This will be 12 days in bed mostly for me. I suffered agonizing bone pain with Prolia (4 shots over 2 yrs. Pain started last year so I refused to take. Due to fracture risk they put me on this and I’m reluctant to do it again) Prolia about killed me last year. I couldn’t bend over to pick something off floor and woke up in morning not knowing if I could get up in so much pain. I really thought I was going to die (it was so bad). I couldn’t walk. I missed Christmas and New Years with family. Too much pain. I am hoping to feel better, but I can’t hold my breath. I’ll update in a few days. These drugs are powerful and I wish I had never heard of them. Now I’m stuck because I have spondylitis, severe scoliosis and no space disk in back. Oh and I want to mention my hands hurt so bad I couldn’t cook for several days. It’s been hell for me. Think twice before you do these drugs. It’s a lifetime you have to continue.