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← Return to P1NP number on Tymlos
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zooie, the Graves is probably responsible for the elevated CTX. Those 131 tricks need # 132. It seems to me that your Graves is uncontrolled. It can take out wide swaths of bone.
Graves can indirectly contribute to elevated pth, but I'm no longer thinking that the parathroid is an issue. Which is kind of a relief. With the parathyroid you'd probably have to have one or more of the glands removed before resuming Forteo.
Graves is no fun and you need effective treatment. But the teriparatide isn't making things worse. It is keeping the osteoblast abreast of the osteoclast in a positive-bone relationship.
Graves is infamous for depression.
I hope your physicians are really smart. This coming from a rank amateur.
I'm saddened to hear of your so recent loss. Grief just takes us. I can only hope that you find impossible comfort.
Replies to "zooie, the Graves is probably responsible for the elevated CTX. Those 131 tricks need # 132...."
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Thank you!
I had the iodine treatment for my graves disease decades ago and have been on synthroid ever since.
I did see the bone PA this week; she had reluctantly provided the script for the bone markers. However when I queried her about the high CTX, she decided I didn't need the bone marker tests and she would instead order them annually if I insisted. Sigh!
I'm to continue on the Tymlos, reduce my calcium intake, reduce the Vit D from 4k to 3K and in a month, test for: PTH, ionized calcium, magnesium and CMP. I'm also getting the Dexa for the forearm; I have so much osteoarthritis that I can't get a reading for my spine and I've had hip replacement. Then I will redo the REMS in July.
She also said if I tested positive for PTH, I'd have to go on Prolia. I'm going to have to review possible options.