Hello OregonK
I am so sorry you are going through so much. Hopefully, you find the help that you need soon.
I agree with Jennifer, that Dr Fogelson, at Mayo in Minnesota, would be a good choice to consider. After consultations with 2 other surgeons, at other institutions, I decided to have surgery with Dr. Fogelson, because he has a lot of experience in dealing in cases like mine. My surgery is scheduled for May.
Should it not be possible to go to Minnesota, there is also a Mayo Clinic in Phoenix.
In choosing a spine surgeon, I personally would select a neurosurgeon.
I quickly glanced at the website for OHSU Spine Center (University of Oregon) and saw one doctor --Dr. Orina, that has excellent background, including a Neurosurgical fellowship at Mayo and an Orthopedic fellowship in Complex Spine Surgey at UCSF.
You might want to take a look at him and the other doctors at OHSU.