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DiscussionAny one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: Jun 24 2:03pm | Replies (168)Comment receiving replies
Replies to "I get the lanreotide injection every three weeks. I have GPNET grade 2 resection from small..."
Love your positive and focused mindset - makes a great deal of sense to be seeking versus avoiding. My MENS1 began with kidney stones and parathyroid removal (x3) the last one was taken from the neck area and placed in my left forearm - very cool huh? Kept an eye on the Ca levels and Pth levels and low and behold they found NETS not only parathyroid but pituitary then pancreas lesions.... removal of all the offending organs (pancreas, gall bladder and spleen) I and my pump/CGM system are rather care free. PET scan last month found a NET carcinoid so the beat goes on.
I also forgot to mention the acne rash. I have always had still do and believe this cancer is cause. I get some reduction after active net surgical removal. I take minocycline and sirolimus and it seems to keep the acne rash at bay much better than anything else. I used to take 4 Benadryl a day this works better for me.
Hope that’s helpful for some. Lots of makeup my only other solution.