← Return to Pyroderma gangrenosum 4 over 2 years from crohns anyone else out there

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@tyratrin

I am 71, retired at 68 and I also have that disease. And I used to be a fairly young 67-year-old, but then the wall hit. I’ve had rheumatoid arthritis for probably close to 20 years numerous medicines through time. I now have Copd. 2 years ago I started getting sores on my legs and they found it to be pyOderma gangrenosum. Some of my wounds actually one of my wounds is still healing and now I am starting to get more. Medicines have been changed also are used to take And Grill worked wonderfully and when I started on Medicare they wouldn’t approve it and so the doctor put me on orencia, That is when I started getting the sores. Now on Remicade and we will see.

The only thing that really helped and it took forever and like I said I still have some wounds and I’m getting more was compression and steroids. And I take them sporadically. QAnd for the last two days my left eye is swollen and painful, and I can’t get into a doctor and praying for Monday. I am at a point where I don’t know where to go and I don’t know what to do.

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Replies to "I am 71, retired at 68 and I also have that disease. And I used to..."

I have been told that remicade is the best medicine for treating PG.. I unfortunately am allergic to it. I too have been on and off steroids and other medications. I am complete covered in scars.
Between both of my legs I easily have over 100 scars amd still fresh wounds. My arms are now are starting to get bad as well. Thank you for sharing .. it's a terrible disease.. crohns, I have arthritis as well, but like I said , pyroderma is something i.could of never imagined.. good luck to you