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Connect with others with Severe Scoliosis + Restrictive Lung Disease
Spine Health | Last Active: Apr 19 9:50pm | Replies (31)Comment receiving replies
Hi,
I finally got a referral to the Mayo Deformity Spine Surgery Department. And after my first appointment, am feeling truly blessed. The Deformity Spinal Surgeon explained everything and a plan to correct my spine. Can not say enough about how amazing Mayo is.. It took me 34 years of pain to finally get a referral, wish I had gotten it earlier.
Replies to "Hi, I finally got a referral to the Mayo Deformity Spine Surgery Department. And after my..."
@3986 Welcome to Connect. I’m glad you have a plan and a surgeon who will help you get there. I’m curious now as to who your Mayo surgeon is, and it’s always good for others to know when you’ve had a good experience. These are big surgeries that will have extensive recovery and rehabilitation afterward, and of course there are the limitations of movement from hardware and fusion. I’m not a scoliosis patient, but I can imagine it is a difficult choice to trade movement with compromised body function for a supported rigid spine that gets the body into improved alignment. As Dr. Fogelson says in his video, it doesn’t have to be perfect and sometimes it isn’t possible.
Is your pain pump removal procedure scheduled? I’m sure you’ll need to do things to get ready and also book your accommodations while you are at Mayo.
Hi 3986,
Congrats on finally getting the appt at Mayo.
Sounds like your bones are stronger than mine. At the recommendation of my endocrinologist, I have been doing daily injections of generic Forteo for over an year now.
My surgery is mid-may at Mayo Rochester.
Good luck to you and May we both fine relief soon.🙏
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Hello OregonK
I am so sorry you are going through so much. Hopefully, you find the help that you need soon.
I agree with Jennifer, that Dr Fogelson, at Mayo in Minnesota, would be a good choice to consider. After consultations with 2 other surgeons, at other institutions, I decided to have surgery with Dr. Fogelson, because he has a lot of experience in dealing in cases like mine. My surgery is scheduled for May.
Should it not be possible to go to Minnesota, there is also a Mayo Clinic in Phoenix.
In choosing a spine surgeon, I personally would select a neurosurgeon.
I quickly glanced at the website for OHSU Spine Center (University of Oregon) and saw one doctor --Dr. Orina, that has excellent background, including a Neurosurgical fellowship at Mayo and an Orthopedic fellowship in Complex Spine Surgey at UCSF.
You might want to take a look at him and the other doctors at OHSU.