Beginning EBRT next week. Do I need to follow a low-fiber diet?

Posted by johnny8924 @johnny8924, Feb 6 11:42am

I failed my first EBRT simulation and was advised to follow a low-fiber FODMAP diet and take GAS-X when needed to "ensure" a clean rectum and to eliminate gas. I passed my second simulation yesterday. The FODMAP diet provides some benefits but also some slight constipation issues. I'm not looking forward to following this diet for 28 EBRT sessions. Any advice, suggestions, recommendations, etc are very appreciated. Thank you.

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@jeffmarc

Your numbers are the exact opposite of normal. They would give you five sessions to your prostate and then 20 sessions to other parts of your body. It doesn’t take 20 sessions of SBRT to totally radiate a prostate. It only takes five.

That’s what puzzles me my brother had five sessions SBRT to his prostate and it’s effectively gone. I know many other people that have had those five sessions. I can’t imagine how 20 sessions could be on a prostate.

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@jeffmarc wrote "Your numbers are the exact opposite of normal. They would give you five sessions to your prostate…"

Mystery solved! It's about billing (at least originally).

According to Dr Walsh's book, the 1-week/5-session limit for SBRT "is likely related to the length of time required for each treatment session, as well as to an odd Medicare rule that decreases the hospital's reimbursement if more than five treatment sessions are given with this particular machine."

According to the book, moderate hypofractionated SBRT (4–5 weeks) has been the global standard of care since about 2018, but extreme hypofractionated (1 week) is getting more support to show that it's also safe, especially for low/intermediate risk PCa, so it's not *just* about the billing. 🙂

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@northoftheborder

@jeffmarc wrote "Your numbers are the exact opposite of normal. They would give you five sessions to your prostate…"

Mystery solved! It's about billing (at least originally).

According to Dr Walsh's book, the 1-week/5-session limit for SBRT "is likely related to the length of time required for each treatment session, as well as to an odd Medicare rule that decreases the hospital's reimbursement if more than five treatment sessions are given with this particular machine."

According to the book, moderate hypofractionated SBRT (4–5 weeks) has been the global standard of care since about 2018, but extreme hypofractionated (1 week) is getting more support to show that it's also safe, especially for low/intermediate risk PCa, so it's not *just* about the billing. 🙂

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Yes, North, like Cyberknife and MRIdian 5 session tx. But @clandeboye posted that they’re even doing just TWO sessions now in some cases….I can hear the sizzle now!🫣

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I would have a protein shake with Blueberries first thing in the morning along with a scoop of psyllium. Things move through every time except once and I was prepared. We would get thrown off the island but could get back on if ready within the allotted hour. I carried a small enema in my coat pocket. They wouldn't give us anything, so I met my needs in 8 minutes. A small shot in the rectum did it.

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@chippydoo

I would have a protein shake with Blueberries first thing in the morning along with a scoop of psyllium. Things move through every time except once and I was prepared. We would get thrown off the island but could get back on if ready within the allotted hour. I carried a small enema in my coat pocket. They wouldn't give us anything, so I met my needs in 8 minutes. A small shot in the rectum did it.

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Oh man, and here I thought I was the only one doing “concealed carry”! I used to laugh thinking that if I ever got hit by a car the EMT’s might go thru my pockets and bring me straight to a mental hospital instead of the ER…you cannot make this stuff up🤣🤣

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@heavyphil

Oh man, and here I thought I was the only one doing “concealed carry”! I used to laugh thinking that if I ever got hit by a car the EMT’s might go thru my pockets and bring me straight to a mental hospital instead of the ER…you cannot make this stuff up🤣🤣

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Phil, "concealed carry" hilarious! I was willing to go to any length to get off that damn table in 25 days. Figured I wasn't the only one.

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@heavyphil

Yes, North, like Cyberknife and MRIdian 5 session tx. But @clandeboye posted that they’re even doing just TWO sessions now in some cases….I can hear the sizzle now!🫣

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@heavyphil Anyone in the USA been treated with the 2 Fraction SBRT ?
Dr. Andrew Loblaw was a key player in the 2 vs 5 Fraction Analysis at the Sunnybrook Hospital in Toronto . The " TOFFEE META ANALYSIS " .

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It is available at several locations. MD Anderson has it at multiple locations

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@heavyphil

Yes, North, like Cyberknife and MRIdian 5 session tx. But @clandeboye posted that they’re even doing just TWO sessions now in some cases….I can hear the sizzle now!🫣

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@heavyphil & northoftheborder I have just completed my 5th and last SBRT treatment. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. Do I need to follow a low-fiber diet?
I asked my oncologist, and she said, "For as long as you take Orgovyx, not because of SBRT."
(She told me last week that we will know if I will be on Orgovyx for 8 months, one year, or longer. I think it depends on what my PSAs will show. I read in another discussion topic that with Gleason 9, ADT should be 18 months minimum. I was Gleason 7 (3+4) two months ago; has any one with Gleason 7 been off ADT before 18 months?)

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@vircet

@heavyphil & northoftheborder I have just completed my 5th and last SBRT treatment. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. Do I need to follow a low-fiber diet?
I asked my oncologist, and she said, "For as long as you take Orgovyx, not because of SBRT."
(She told me last week that we will know if I will be on Orgovyx for 8 months, one year, or longer. I think it depends on what my PSAs will show. I read in another discussion topic that with Gleason 9, ADT should be 18 months minimum. I was Gleason 7 (3+4) two months ago; has any one with Gleason 7 been off ADT before 18 months?)

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First of all, Congratulations! But now that you are done, I don’t know why fiber/diet is of any consequence at all…and because of Orgovyx??
I’ve never heard of that either. Perhaps she misunderstood?
Phil

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@heavyphil

First of all, Congratulations! But now that you are done, I don’t know why fiber/diet is of any consequence at all…and because of Orgovyx??
I’ve never heard of that either. Perhaps she misunderstood?
Phil

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Thanks, Phil. the pharmacist and the oncologist said the foods to be avoided, and the herbal drink that I was asked to stop taking, they interact with Orgovyx -- can make the possible side effects worse. So far, I haven't experienced the SEs yet (in my 4th week with Orgovyx). My herbal drink has anti-oxidants -- protecting both the good cells and the cancerous cells. Protecting the cancer cells will make Orgovyx less effective. That's the message I got from what they were saying. I am inclined to give them the benefit of the doubt, for now.

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