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My pulmonologist and I don't see things the same. He told me to use my nebulizer 4 times a day and use the flutter and it would get rid of my cough and bring up mucus blocking my airways. I did what it said and not once did I cough up anything. I have Sjogren and it is hard to cough up anything. Now he says I am micro-managing my disease. He doesn't listen. Ready to go else where if he doesn't fire me first.
Replies to "My pulmonologist and I don't see things the same. He told me to use my nebulizer..."
You may be better served by looking for another pulmonologist. Any expert I have heard speak on BE acknowledges the challenges of airway clearance and how many patients don’t bring up much mucus with airway clearance which can be frustrating for us. That’s not “micro-managing” that is just reality. What would be more helpful to you than patronizing unproductive (pun intended!) commentary would be brainstorming on possible ways to improve airway clearance (there are tools in addition to nebulizing and flutter) and possible other approaches to easing cough. A referral to a respiratory therapist specializing in BE would be optimal but those types of therapists seem rarely available. I don’t know what you are nebulizing 4 x a day and don’t have familiarity with Sjogren’s to offer any specific feedback but I do want to acknowledge that your experience with airway clearance is common and if your doctor doesn’t realize that it’s a strong sign they are not a BE specialist.
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Need more information. What medications are you nebulizing 4xday?