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@dbamos1945

@lanamarie: I’m glad you are being proactive in your cancer healthcare. I would first check with your medical insurance company for their 2nd opinion protocol. The reason a NET specialist is critical is because our NET cancers react differently than Pancreatic Cancer -your diagnosis is NET in Pancreas as I understand. You need the most NET experienced drs to carefully evaluate your situation to be able to offer best treatment for your NET tumors. Your prognosis is most important!
My experience is that Medical Oncologists with minimal exposure to how NET tumors are treated will not blink at your request when you ask for referral of 2nd Opinion for NET specific info from NET oncology specialist. You need doctors who can advise you how to best proceed with treatment. They have info on most effective drugs and procedures. This also applies to surgeons as well -need to be experts in NET surgery. You have identified Mayo Clinic in Rochester - there may be other Cancer Centers to choose from as well.
In my case I saw a NET specialist at City of Hope (2+ hr drive away from home); now that my treatment is finished he still follows my case, but I see my local oncologist monthly.
Let me know how it goes. You are doing great researching specialists!

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Replies to "@lanamarie: I’m glad you are being proactive in your cancer healthcare. I would first check with..."

Thank you for your encouragement. It certainly helps to have people who are familiar with pNET and can offer expertise on how best to move forward. I've been trying not to be too concerned but sometimes my mind doesn't cooperate with what I would like it to do. (You'd think I'd have better control...but nope! It's pretty good when you surprise yourself. :-)) Due to the posts I have been reading here, I am even more convinced that I have to be my own advocate. I needed that bit of a push to encourage me to keep on top of things. Thank you!