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Just diagnosed with PNET: Any thoughts on watch & wait approach?

Neuroendocrine Tumors (NETs) | Last Active: Apr 14 7:06am | Replies (30)
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@lanamarie

Thank you for your informative and thoughtful reply. I did check for a NET specialist at Mayo in Rochester and one is there. I'm a bit unsure how to go about getting an appointment with him without Dr. Majumder my pancreatic doctor, making the recommendation. I don't want to go behind anyone's back or risk my standing with Dr. Majumder. I am planning to consult with my local hematologist for answers to some of my questions and his thoughts on trying to add a NET doctor to my team.

I so appreciate your help!

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Replies to "Thank you for your informative and thoughtful reply. I did check for a NET specialist at..."
Teresa, Volunteer Mentor | @hopeful33250 | Apr 14 7:06am

Hi @lanamarie,

I see that you are uncertain about getting a consultation at Mayo Clinic for a second opinion. In order to put your mind at ease, here is a link with appointment information, http://mayocl.in/1mtmR63. If you call, you can get information about insurance coverage, and whether or not you need a referral, etc.

I can understand your sensitivity when you say, " I don't want to go behind anyone's back or risk my standing with Dr. Majumder." However. please know that second opinions are well received by doctors. It is part of the process whenever you are dealing with a serious medical condition.

I look forward to hearing from you again. Will you continue to post and let me know how you are doing?

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