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Alzheimer's: Wanting to connect with others
Brain & Nervous System | Last Active: May 2 7:33am | Replies (18)Comment receiving replies
My understanding is that there are two new drugs that reduce amyloid plaque in the brain that may slow down the progression of Alzheimers. They are Kisunla and Leqembe and are given by infusion. Kisunla is given once a month for 18 months. Leqembe every 2 weeks. They have only been on the market for one year and are definitely not a cure. Scary but my husband and family want to take the chance that it will help. Lots of unknowns and potential bad side effects such as brain bleeds so 5 MRI’s in the first 6 months.
Replies to "My understanding is that there are two new drugs that reduce amyloid plaque in the brain..."
My husband (early stages) and I opted to try Kisunla. Lilly (manufacturer) has a great support and we were assigned a nurse that called us after infusions etc. because the drugs are so new, they have a very strict protocol as far as the MRI’s go. Unfortunately, my husband had adverse effects during the infusion. First one was OK, although he did have a headache 2 1/2 days later and we had to go to the ER. All was OK then. Second infusion halfway through his BP bottomed out. Our neurologist had had no patience. Have this happen. We gave a third infusion a try and the same thing happened so we have to take him off of Kisunla. We are now going to try Leqembi.
We are honestly not sure if it’s worth it or not? While it only seems to slow the process of Alzheimer’s by approximately six months. At least that’s what I’m reading. Hope it’s wrong. But at this point we’re willing to try.
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One additional piece of information from our neurologist is that the infusions only work when dementia is in the very early stage.