← Return to Adjusting to life with temporal arteritis

Discussion
Comment receiving replies
@jeanrod825

My numbers are never very high on blood work. I do not have PMR, just GCA. I woke up one morning and had partial vision loss . When I look back I had been having a lot of symptoms. Just never had heard of GCA. I do blood work once a month when I go to my doctor. I need to ask doctor if she wants me to up dosage when I feel like I have a flare. I am on 20 mg now and just hate to think of upping the dose bc effects are so bad. I started at 80 and down to 20 mg prednisone now. I will talk to her about Actemra. Thanks for your help.

Jump to this post


Replies to "My numbers are never very high on blood work. I do not have PMR, just GCA...."

I hate the side effects of Prednisone, too. Actemra has its own side effects. Pick your poison. I am more comfortable with taking my chances with the Actemra. I'm currently at 7 mg. day. My goal is 0 and I think it's acheivable. (A tip about Actemra-if you are on Medicare, Part B will pay for infusions. If you go with the self injection at home, you'll likely deal with a co-pay on your Part D.)