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← Return to Diagnosed with Ameloblastoma
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Head & Neck Cancer | Last Active: Sep 10 7:47am | Replies (287)
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Thanks for your reply, @tomschwerdt!
I appreciate that you and a few others have updated us on the targeted approach that some of us may end up trying down the road. Glad to hear that your thyroid is back in line. That can really affect so many of our systems!
Replies to "Thanks for your reply, @tomschwerdt! I appreciate that you and a few others have updated us..."
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Had my periodic trip to MDA for evaluation, CT, etc.
Pretty routine: Tumor considered "stable" with additional minor jawbone remineralization (bone regrowing and/or getting denser) around the tumor area. Continuing the BRAF V600E-targeted chemo.
Very slow progress - and it's hard to really judge when I have a different radiologist performing the CT eval each time and each of them writing in their own style. I might get size measurements of the tumor in 3 dimensions, or 2 dimensions or 1 dimension or no numbers at all. Comparison is generally against the CT from 3 months prior.
One radiologist noted TMJ arthrosis (arthritis) awhile back, none of the others have mentioned it. What I would really like is to have her evaluate across all the CT imaging.
One thing I will say: MD Anderson works very, very hard to make it the best patient experience possible. Everyone really listens. Everyone really cares. I'm a person there, not just a patient being treated for ameloblastoma.