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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: 1 day ago | Replies (237)

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@tomschwerdt

Hey, the chemo was better once I was on an appropriate dose of thyroid hormone.

The main ongoing side effects I notice are: I overheat more easily (poorer thermal regulation) and my energy/endurance is somewhat lower than before starting the targeted chemo. I've been slowly losing the weight I initially gained before we got the thyroid hormone back to appropriate levels.

A rapid regrowth is definitely troubling. As I've said before, after my conservative surgery I had monitoring for 5 years with zero regrowth. After about 15 years regrowth was caught on a dental X-ray.

I've been thinking about it a lot, and I'm wondering whether all these CTs are actually necessary for just monitoring. High-resolution Panoramic X-rays are a lot cheaper, and that's all I had the first time around.

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Replies to "Hey, the chemo was better once I was on an appropriate dose of thyroid hormone. The..."

Thanks for your reply, @tomschwerdt!

I appreciate that you and a few others have updated us on the targeted approach that some of us may end up trying down the road. Glad to hear that your thyroid is back in line. That can really affect so many of our systems!