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Peripheral Neuropathy - Result of PMR or Prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: 5 days ago | Replies (41)Comment receiving replies
I already had peripheral neuropathy (an NFI version--No Fucking Idea why) and was able to stop its progression with red light therapy and supplements. I still do the therapy and the one numb toe has a little feeling in it. Mine has not worsened with PRM or prednisone. I'm three months in on prednisone. Started at 1 mg, went to 8. Side effects so awful, I'm tapering off. Down to 6.5
Replies to "I already had peripheral neuropathy (an NFI version--No Fucking Idea why) and was able to stop..."
Which supplements did you take for peripheral neuropathy, the NFI kind? have had it for 25 years. I get sensation as soon as the acupunturist puts in the needles anywhere in my body. Will research red light therapy. Only someone who has experienced the side effects of prednisone knows how awful they can be. Trying to get off prednisone. I am at 5mg and in hell. I wish you success on your journey!
I have idiopathic peripheral neuropathy which started about a year after PMR was diagnosed. I started long term prednisone shortly after my diagnosis of PMR. I don't know what caused the peripheral neuropathy but I didn't have it before being diagnosed with PMR.
My peripheral neuropathy got progressively worse while PMR was treated with Prednisone. After 12 years of Prednisone, PMR was treated with a biologic. I finally tapered off Prednisone. I still don't know what caused my peripheral neuropathy but now it is getting progressively better. It might have been PMR because it is better too. It might have been caused by something else or another autoimmune condition but I don't know. All I know is that Prednisone didn't make my peripheral neuropathy any better.
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What supplements are you using?
Thanks.