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@justbexlo

I have an appointment with urology today and gyn/onc on Tuesday. I'm scheduled for a PET scan a week from Tuesday.

I've been through the radical hysterectomy due to endometriosis and fibroids. I was told by my doctors then not to worry about "down there." Much of my freak out is due to my mother who passed away in March 2023. She had uterine carcinosarcoma and was dead a month after diagnosis. I get that this is different but it is just playing out so similar.

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Replies to "I have an appointment with urology today and gyn/onc on Tuesday. I'm scheduled for a PET..."

@justbexlo Your appointments following the diagnosis of just yesterday (do I have that right?) are coming quickly. That was the same for me. I went from diagnosis to appointments and then on to the hysterectomy in less than 2 weeks.

I am so sorry about your mother. That is such a loss for you and it happened very quickly.

You are meeting with the gyn/oncologist on Tuesday so may I recommend that you talk with the doctor about your mother's diagnosis? Her diagnosis is very different than yours although perhaps the rapidness of the diagnosis to treatment feels very similar. While your diagnosis and that of your mother may not be similar your emotions right now are very tied into the loss of your mother.

I'm surprised that a doctor would say that there is nothing to worry about "down there" after your radical hysterectomy. I suppose that could mean the removal of the uterus but that doesn't exclude other "parts" of your body. I asked my medical provider that I see every 6 months (previously every 4 months) about the practice of pelvic and external exams. She does a very thorough exam externally and internally. I've learned, though, from others here on Mayo Clinic Connect that other women do not receive this thoroughness. I find this puzzling.

Will you please come back after your appointments in urology and gyn/oncology and let me know what you find out?