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Better to be in some pain or better to up the dose of prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Apr 13 9:13am | Replies (36)Comment receiving replies
So, let’s say “remission” is the situation where you can drop a level without experiencing PMR pain. Perhaps “control” would be a better term. My rheumy used “remission” after I went from 30 to 10 over a 3-month period while experiencing zero pain. My inflammatory markets were then normal. I then went from 10 to 5 at 1 per month with occasional transient non-PMR pains, and then to zero at 0.5 per month, again with only non-PMR issues.
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That's an exceptionally good result and I agree that it is what we would all hope for in terms of remission. For many of us though the doctors see remission as normal inflammatory markers and drop the dose by 10% or more (say from 15 mg to 14 mg) and quickly the inflammatory markers shoot up again. In my case I went from 10 mg (after months of successful reductions) to 9.5 mg and CRP went from normal to 28. I am now back up to 16 mg after 3 months of increasing the dose to try to get the inflammation markers back to the normal range.