← Return to Did I make a terrible mistake? And what to do next?

Discussion
Comment receiving replies
@egayle187

I' m sorry to hear you are struggling with bronchiectasis and have no luck coughing up the mucus. Going to an ID doctor is the right move. I had MAC 11 years ago and have been free of it since taking the Big 3. They work. Do not be afraid of antibiotics. The infections can spread insidiously while you feel good. While I am able to get 95 % O2 with one dead lobe and another compromised, I would not suggest ignoring a specialist's advice. Since I was diagnosed, many more pulmonologists have become educated about it and more research is being done. You are lucky to have them available.
About your mucus. I use postural drainage, the flutter valve and nebulizer twice a day. I agree with @pacathy Good luck

Jump to this post


Replies to "I' m sorry to hear you are struggling with bronchiectasis and have no luck coughing up..."

How lovely to hear you have been free of MAC for 11 years. You are the first person I’ve heard say that. Everyone I’ve spoken to have had MAC return after a year or so and go back on the big 3 again!
What were the 3 you took and how often. Also did you make changes to avoid reinfection? Love to hear back from you.

Wow! Congratulations on being MAC free for 11 years. That is awesome! I guess I will see what the ID doctor says and follow her advice regarding antibiotics. Your comment has made me feel less anxious about taking them

@egayle187 eleven years! Whoa! Congratulations! It’s inspiring to hear these positive treatment outcomes. Thank you for sharing.