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Leqembi: Anyone else taking this infusion to slow dementia?

Caregivers: Dementia | Last Active: 2 days ago | Replies (57)
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@bhv

My wife just finished her 2nd Leqembi treatment. The 1st treatment caused terrible headaches for about 18 hours and mild fever with fatigue. It was so bad that her doctor had us do an MRI to clear her for further treatment. The MRI showed no problems. Prior to the 2nd dose, she took a maximum strength Tylenol and Benadryl and we lengthened the treatment time to 1.5 hours. So far this treatment seems to be OK.

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Replies to "My wife just finished her 2nd Leqembi treatment. The 1st treatment caused terrible headaches for about..."
badlandsgirl | @badlandsgirl | 4 days ago

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moea | @moea | 2 days ago

I am sorry to hear that you wife had such a reaction to Leqembi. It must have been a relief after the MRI showed all was well with taking the drug. I am not sure how I would feel if he had to discontinue his treatment. It has definitely given us some hope, even if it is just a glimmer... My husband is having his 4th infusion this coming week and is scheduled for an MRI after that treatment. It is standard procedure to check for brain bleeds as you know. I have noticed that for about a week after the hour-long infusion he seems more himself. I am not sure if this is what others are experiencing? Have you noticed any changes in your spouse?
Thank you for the info you posted, it might help someone else.

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