That is interesting that you also were diagnosed with SIBO. I was on three different antibiotics to try relieve some of the symptoms, but none worked. When they did the endoscopy at that time, they found a fluid filled mass on my pancreas, but determined it to be non-cancerous. The size of that mass remains the same as four years ago. The somewhat troublesome thought in my mind was my 19-9 antigen test for pancreatic cancer was quite high at that time, but it seems when the SIBO test came back positive, everything focused on that and nothing more.

In a sense, I am probably fortunate to have the multiple pulmonary embolisms and multiple blood clots in my legs and lungs. My d-dimer was very high when I went to the ER at 3:00 a.m., unable to take a deep breath and in horrendous pain. My hematologist made the initial contact with Mayo for further testing which lead to the neuroendocrine pancreatic tumor and the surprise to all the doctors that it was cancerous. The fortunate part is that they found it in the early stages and believe it to be slow-growing. I am so sorry that your cancer had spread when they finally diagnosed you. It has to be so frustrating, knowing you weren't feeling well but only coming up with SIBO. Thankfully the treatments have helped you. You must be a very strong person to go through all you have. I appreciate you reaching out. It can be very lonely at times!