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Treating PANS/PANDAS

Post-COVID Recovery & COVID-19 | Last Active: Apr 11 6:26am | Replies (11)

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@spalardy

No ,I spoke to 3 different staff members and they told me conflicting information with the bottom line being that "they do not recognize the diagnosis, but will treat symptoms." This makes absolutely no sense and the first person told me I could request an appointment with Pediatric Neurology, final person ended up saying, "you can only get an appointment with general pediatrics." So disappointing that Mayo is so behind all the other centers on this. They're supposed to be the best.

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Replies to "No ,I spoke to 3 different staff members and they told me conflicting information with the..."

I have been told that you have better luck connecting with a MD if you describe the illness as autoimmune encephalopathy rather than PANS/PANDAS.