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Anyone have dedifferentiated chondrosarcoma? What treatment?
Sarcoma | Last Active: Nov 9, 2025 | Replies (14)Comment receiving replies
Has anyone been diagnosed with dedifferentiated chondrosarcoma of the hip and how has it been treated so far?
Replies to "Has anyone been diagnosed with dedifferentiated chondrosarcoma of the hip and how has it been treated..."
Hi Richat, my name is Stella. I have already had 2 surgeries on my leg, but I have a new recurrence in the same place. There is currently a clinical trial for a drug, it is also available at the Mayo Clinic.
Hello Richard, where are you being treated?
Chris o’Brien Lifehouse at RPA Sydney Australia
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Hello. My name is Richard. I have dedifferentiated chondrosarcoma of the left hip. Diagnosed 20 months ago. Because it has metastasised I have multiple tumours in my skeleton. As I understand the situation surgery as soon as possible is the only way to stop DC. If I were you I would be getting radical surgery and a hip replacement as soon as possible. There are no known success fuel treatments for this disease . My best advice is do not delay. Best of luck. Happy to answer any more specific questions.