Let’s see if we can figure out somewhere else you can go for an expert second opinion. Are you on the east or west coast? Have you looked at the website http://www.als.org. They have a list of ALS clinics by state. I know MSA has designated clinics of excellence around the country. I’m praying you DO NOT have this. I know someone who has benign fasciculation syndrome, it’s annoying buy not terminal. So keep you eyes on that prize. Will be praying for you and let us know if you find another good place for your 2nd opinion. ❤️