← Return to Post viral syndrome peripheral nerve hyperexcitability

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@fryski43

Hi @josh701

I wanted to say thanks for sharing, your history sounds very similar to my own. In Dec 2024 I caught the flu from my young son and after a hefty chronic cough developed tingling and burning on my tongue, constant tingling back and top of the head and ears, tinnitus, constant ear fullness, electric shocks in my toes and localized constant myalgia in the anterior neck muscles. Apparently my nervous system is triggering the muscle pain.

My health anxiety dialled things up, on reflection Dr Google and doomscrolling forums left me catastrophizing to the point it was borderline inducing panic attacks. It's reassuring to hear the strategies that are working for you and that you are remaining to stay strong. Likewise I'm using Cureable, supplements and therapy to navigate through this. Luckily I have no fatigue so physical therapy is massively helping.

Officially I'm diagnosed with localized sensitization (primarily neck and head) resulting in myofascial pain. My nervous system is on constant high alert and needs to reset. I'm on a medium dose of Amitriptyline, bloods all came back normal along with ANA panel and vitamin testing. In a strangely reassuring way my neurologist (who has expertise in long Covid) said that disruption of the nervous system is becoming more common, often triggered now by sinus infections, flu and even hefty colds. What is reassuring is that my neurologist said most people recover with the right strategies and time, I was even given a ballpark timeframe for recovery.

I was curious if your neurologist also gave you a timeframe for recovery and if you've found anything that particularly helped with the anxiety?

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Replies to "Hi @josh701 I wanted to say thanks for sharing, your history sounds very similar to my..."

Glad to hear from someone with similar story. For me the health anxiety might be the worse part. With the muscle twitches I instantly went to ALS measuring my legs etc. It's still a challenge to this day but I remind my self for als it's function not feeling and I have full function.

I found the book hope and help for the nerves by Dr. Weekes. She discusses a 1st and 2nd fear. First fear is the Somatic symptoms then the second fear is what we do that keeps things alive the what ifs maybe it's that. It really is a good read. I used audible and really liked the narrator.

Do you mind telling us what ballpark timeframe you were given for recovery?