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@dwl75

Hi Ron,
I just joined Mayo Connect. My husband’s renal cancer was found when he began having double vision. A tumor was found on his pituitary gland when he had an MRI of the brain. He had surgery for what was a suspected benign adenoma on the pituitary. Surprise! The pathologist called the surgeon down to say it was a metastatic renal cancer. The kidney and tumor was removed and a PET scan showed tumors in the lungs, abdominal lymph nodes, and opposite adrenal gland. Initially he was treated with focused beam radiation to the pituitary and adrenal gland. We then transferred care to Mayo Clinic. Initially, he was on Cabometyx (TKI) and Keytruda( immunotherapy). This combination was working very well and one of the smaller lung tumors even disappeared. He developed the hand/ foot syndrome with blisters and pain and eventually liver and kidney abnormal lab results so he had to go off that. He also was on Lenvima for awhile with good results. He is now on a new class of drug, Welireg. His tumors are stable and we have been battling this for 5 1/2 years now. We are so blessed and thankful he is still here to continue the battle. Take heart that every time you think there is little hope, God and medical science seem to provide additional help. May you achieve excellent results with whatever you and your doctors think is the best treatment for you.

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Replies to "Hi Ron, I just joined Mayo Connect. My husband’s renal cancer was found when he began..."

Hi @dwl75, I know your message was directed to @ronc531, but I thought I butt in to say "welcome". It is helpful to hear about the treatments your husband had and he is doing fairly well all considered.

Has the hand/foot syndrome gone away after changing treatments? How is he doing on belzutifan (Welireg)?