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@jmw120

Have you noticed what makes your pain worse? I have had CRPS for 25 years and while it’s never been cured, I learned that managing what makes it worse has lessened the pain. I signed up for biofeedback classes at the hospital which used taught me to lessen my pain by controlling my reaction to it. Cold makes it worse, so I wear lined pants, my foot swells, so I always wear open back sneakers and clog like shoes. I also had a series of epidural injections early which dramatically decreased the pain. I did find that not moving my leg/foot made it worse. I was never totally pain free, some days it was nuisance and didn’t ruin my day. I thought my life was ruined too. I managed to work and take care of a house and retire. Each step in treatment is necessary to find what works for you especially because you are so young. Don’t give up hope!

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Replies to "Have you noticed what makes your pain worse? I have had CRPS for 25 years and..."

I know things like any sort of pressure or touch makes it really hurt, the cold makes it hurt, and things like a lot of weight bearing, walking, and standing. I don’t know why it hurts most of the time though, usually it can just get really bad without any apparent trigger and make it next to impossible to function out of nowhere and other times its just a sitting, constant pain. Ice, heat, and medication have done me no good so fa. I also know things like the TENS machine make it feel better but the moment I get off it I’ll hurt again and obviously I can’t walk around school with that thing hooked up to my leg all day. I’m hoping when I visit UNC’s pain specialist or whoever I’m going to that they can help me figure it out and help manage it because nothing else has worked so far. Thank you for your reply, I really appreciate it :).