← Return to Lung metastasis: Curiosities from VATS to BATS

Discussion

Lung metastasis: Curiosities from VATS to BATS

Prostate Cancer | Last Active: Apr 10 1:11am | Replies (4)
Comment receiving replies
@dpfbanks

Thank you @heavyphil and I hear exactly what you are saying. Investigating is in my DNA and how I cope. I have not even posted yet about SRBT and the hope that is in that camp! Watching the recent PCRI update is confirmation that there is always something new to try if you fit the box and can afford it.

Once we decide on which pieces will be in our plan, I will ‘let those trained professionals do their thing’ and get out of the way. It’s this window of oliogomestastases that may not last long, so it feels a bit urgent to learn about the options before going down any gold slides.

Yet, I appreciate your warning as to conserving energy as the ‘exhaustive research mode’ can be just that - exhausting. I realize I have jumped on the scene here in a bold way - and I have done so because of all of the smart minds and experienced bodies that are here. Thank you for your time to respond. 🙏🏼

Jump to this post

Replies to "Thank you @heavyphil and I hear exactly what you are saying. Investigating is in my DNA..."
surftohealth88 | @surftohealth88 | Apr 10 1:11am

I really enjoyed reading your post and also the link that you provided. I think that you are doing amazing job investigating and trying to understand your husband's rare case.
You will be great advocate for him knowing so much about his case, especially because he has such rare presentation. I also find great comfort reading and doing my own research because that way I spend time doing something constructive and possibly helpful. I wish I did this much research when my husband was told that gleason 3+3 "means nothing", we definitely would not be in this position now.
I learned long time ago that doctors are usually operating in their own space of comfort and often rely on outdated knowledge and information and push for procedures that they routinely do, not necessarily that are the best or the newest. Heck, I met doctors that "never heard " of certain conditions *eye-roll and I had to bring them printed articles.

I wish you and your husband all the best and complete and forever healing < 3

VIEW AND REPLY