I'm not sure if this is where I should pose my question, but will give it a try. I was diagnosed with pancreatic neuroendocrine cancer on December 31, 2024. The tumor was found during endoscopic ultrasound test that was done. Prior to this, on October 4, 2024, I was hospitalized with bilateral pulmonary embolisms, a pulmonary infarction in my right lung, and multiple blood clots in my legs and lungs. One in my left leg is a DVT. I am on warfarin daily with the dosage changing as my body adjusts. Because of the number of clots, my hematologist suggested I go to Mayo in Rochester for further testing to try to find what might be causing my blood to clot. (I had never had any problems with this prior to the October 5 episode.) I have been a patient at Mayo for several years because of stomach problems, bloating, and pain. I was diagnosed with SIBO at the time. My pancreas was checked during that same visit, four years ago, because my 19-9 level was elevated and I have a brother who passed away from pancreatic cancer which put me at a greater risk for pancreatic cancer. They found a fluid-filled mass on my pancreas that they determined was not cancer. I am seeing Dr. Sawatsky as my general physician and Dr. Mejumder (unsure of the spelling) as my pancreatic specialist. They are also in contact with my hematologist, Dr. Rooney here in Fergus Falls. They were all quite surprised when the neuroendocrine tumor came back positive for cancer. They are taking the "wait and watch" approach because they feel the tumor is slow growing. I'll have another EUS in July at Mayo and have had my 19-9 tested twice since December. (Both times it was elevated, not alarming so, but still beyond the target high of 35.) I feel like a walking time bomb between the embolisms, blood clots, and now the cancer. I'm not particularly fond of basically, "doing nothing", and I am worried that even though they believe the tumor to be slow-growing that it might change and invade other organs. The tumor is on the tail of my pancreas and is small. Their reason for waiting is the invasiveness and difficulty of reaching the tumor. The doctors also say I would have immediate pancreatitis and that is very painful. I sure would appreciate any thoughts or experiences you might have encountered with a similar problem. I just joined the group tonight (it is now 3:25 a.m.). Sleep is not one of my attributes! 🙂 Thank you for taking the time to read through all this!