Yikes kiddo. I don’t know this condition at all but I do know about constant pain. A disease called Dercums. I can only share my experience from the perspective of managing pain.

My first go to is any relaxation technique. Visualization meditation breathing. Whatever you relate to. When my focus changes I can relax into the calm and rise beyond the noise of pain. Everyday and sometimes moments within a day vary. I distract myself with things I love to do. Garden or think about gardening, singing, art. You’ll find your joy One thing for sure worry and fear only feeds the pain. Live life in your joy and promise. I’m 73 this year …. You got this