@bcool123
I hear you. I really didn’t get too much help from my neurologists. One kept testing me over and over again. For example, I was diagnosed by him with small fiber neuropathy using a skin punch biopsy and my neurologist forgot the diagnosis he gave me and over the next year or two he kept testing me for small fiber neuropathy but wasn’t sure I had it?! He didn’t really offer any good treatment options or guidance. He only prescribed a few medications that made me too drowsy to function at all (I had a demanding job at the time and I’m a single parent of a minor child). I looked up supplements and treatment options and read about taking alpha Lipoic acid and Acetyl l carnitine. I started taking them and the burning in my feet improved. When I told my neurologist I was taking these supplements, he said he had heard they help some patients (then why didn’t he mention them to me as an option)?!

You may still want to see an orthopedic spine specialist and have your cervical spine looked at with cray and MRI. Cervical disc bulges, bone spurs/osteophytes, vertebrae slipping over others can compress the spinal cord and nerve roots and cause all sorts of weird symptoms. When I first went to my neurologist, I had many symptoms like daily headaches, ringing and buzzing in my ears/head (tinnitus), weird facial burning along cheeks/chin/upper lip (like burning mouth syndrome), neck/shoulder pain/tightness/knots, brain fog, bladder control issues and difficulty walking. Later I was finally diagnosed with cervical radiculopathy/myelopathy (5 years later) by an orthopedic spine specialist and he recommended surgery. My spinal cord/nerves/blood vessels was being injured at C5-C6 level which was behind many of my symptoms. I have some permanent spinal cord compression injury due to the delay in diagnosis (shoulder/arm/hand weakness).

I hope you can get some answers on whether you have compressed nerves in your spine that may be behind some of your neurological symptoms.