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Please let me know if someone is using LDN

Autoimmune Diseases | Last Active: Apr 11 6:13pm | Replies (21)
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@jdnc2023

I have been considering trying LDN for RA, but I read it may cause fatigue. I stopped my methotrexate and humira because I was getting very little relief, and i also wanted to have more immunity when I go on an 11 day cruise in June.
Does anyone have any feedback on LDN and fatigue? I'm already dealing with fatigue and possibly Sjogren's. I haven't discussed with my doctor yet.

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Replies to "I have been considering trying LDN for RA, but I read it may cause fatigue. I..."
pm56 | @pm56 | Apr 9 10:20am

I use it in addition to Methotrexate and Cosentyx. I can’t say I’m any more tired on the LDN than without. But I am definitely less tired on all three drugs than I was from just the disease itself.

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pm56 | @pm56 | Apr 9 10:22am

PS - Pemgarda is available to those who are immunocompromised either due to an underlying condition or immunosuppressive drugs. It would offer you some protection against Covid.

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suetex | @suetex | Apr 9 11:46am

I've been taking it for about 6 years (for autoimmune diseases such as Crohn's, PMR and Sjogren's) and I can't say I have experienced any fatigue. I feel very certain that it works for Crohn's. Can't tell about the others. But since I have been symptom and medication free (except for the LDN) I feel pretty good about it. I take just 2 mg- because 4mg didn't make any difference. I say try it carefully. Start with a low dose and work up. And there is lots of research on to look at. Good luck!

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