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@northoftheborder

I think part of the answer is that every cancer patient needs something like a project manager or case officer overseeing *all* of their healthcare.

It doesn't have to be a doctor (family doctors are too overworked to do it anyway), but maybe a social worker or nurse who has some kind of professional standing to coordinate with the different medical teams. Inside hospital, the floor nursing station and resident played that role for me, but on the outside, the cancer centre focussed only on things related to the cancer itself, and I had to coordinate the rest myself.

I bet it would even save the healthcare system money, because we'd end up with many fewer $$$ advanced cases and ER visits.

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Replies to "I think part of the answer is that every cancer patient needs something like a project..."

Consider the specialists I've seen after I started this journey in 2021:

- neurologist
- orthopedic surgeon
- radiation oncologist
- medical oncologist
- urology oncologist
- pain management doctor
- cardiologist
- bariatric medicine specialist
- physiotherapist
- occupational therapist
- hematologist

And probably 5 or 6 others I've forgotten about. That's a lot of coordination, especially when I was still in a wheelchair.

Now you’re just being too logical altogether

A Patient Advocate - not a novel idea, but one not yet supported with funding that is independent. As a spouse, and inveterate investigator, I am trying to fill that role....and its exhausting.