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At what point do you start Pluvicto?
Prostate Cancer | Last Active: 2 days ago | Replies (22)Comment receiving replies
he already had the PSMA PET scan and it showed so much, numerous lesions in lungs, bones, hips, pelvis, spine, shoulder bones etc....
I think that's why they're doing the bone density test too at least to get a beginning start point, the chest CT scan I think is for the lungs and more details of how far it's progressed. He has a slight cough constantly, but not like a cold cough nor like a COPD cough, just a little AHEM cough.. but every few minutes!
He has the ADT pills (Zytiga I believe) and prednisone here but is told not to take them because of the liver enzymes going up (because he's taking his own supplements- he's not telling them which because they'll probably stop offering treatment) then again I argue that we SHOULD tell them, since he's not listening to them anyways.
Part of me trusts the doctors at UNC, part of me doesn't... I think my husband is so far gone that he'll die soon anyways! I've given up on the fighting!! My husband is being fickle about it all, one day he says reluctantly yes, the next day it's a hard no! I completely lost my cool before he took the shot because he wasn't going to do it, I yellow and threw a chair around and have a few dents in my wall now (in my studio upstairs, where he rarely goes)
If you can find my older posts, that gives more insight to what we've been thru since February!
It was really just a doctor visit for an enlarged prostate, that turned into high PSA, 250 or 300, I can't remember now without looking, then pelvic CT scan that showed it outside prostate, urologist, then biopsy with gleason group scores of all 8 and 9s! then PSMA scan that showed all the above.....each test is worse and worse..... now his liver numbers are high (though we think it's his supplements)
I think the days for playing with supplements are too late now, now it needs to be aggressive and right NOW!
Add to that we have 4 children 22 down to 9 years old, my husband lost his job a year ago, then his parents got ill and passed away in the fall, after we/him took take of them full time, my best friend was in the hospital right after that for over 100 days! then this, then my mom died 2 weeks ago and my 20yo daughter and her boyfriend broke up last week..... I'm mentally exhausted!! I know God provides, but geesh!! enough already!! I don't want to be a widow too soon!! I already have my inlaws ashes in the closet, soon to add my mom's, I really don't want a 4th! I don't want to start THAT kind of collection!!
Replies to "he already had the PSMA PET scan and it showed so much, numerous lesions in lungs,..."
I read too fast and saw bone density scan and thought bone scan, which is usually combined with a CT that you mentioned.
Some supplements can duplicate what some of the ADT drugs can do, and can mess up your blood test results The fact is, there’s almost no supplements that are going to benefit him other than calcium, vitamin D, and maybe B12 or a multivitamin. Some people get so hooked up in these vitamin theories that they don’t face the fact that they really aren’t helping.
This is a matter of life or death, We have an advanced case and he needs to get on the proper drugs right away. Dropping those vitamins and getting his liver Enzymes back to normal is really critical for his future, survival. He has a serious case he needs to get moving. The doctors are not trying to deceive you. Your husband needs these drugs they’ve given you right away to stop the cancer from growing and try to get it to shrink some. The more you read in this forum the more you will see that people are getting the same sort of treatment choices as you are getting.
Has he become depressed by this? Does he not want to face it and not willing to really address the issues? He may need an antidepressant for a little while. This is not unusual, Somebody was just mentioning a few days ago, that they started Zoloft and it made a difference completely changed their whole World view. There are other drugs, you need to really get something done on this, find out why he’s reticent to do anything.
I would imagine all of the things going on in your families are part of the problem. I hope you get some help for his reticence to do what is needed, ,you have young kids at home. You want to get this treated you want him living as long as possible.
So sorry to hear that there are so many tough issues that you and your family are having to navigate all at once. You have received some excellent thoughts from others on this thread already. Some additional support is available in the form of patient and family services at UNC medical centers that might be helpful to you and your husband in a number of different ways. If you would like to share which UNC campus you are being seen at, I will find and post the links you can use to get connected to the services available at that campus.
Best wishes to you, your husband and children on this journey. We are here for you.
Bill
I feel your frustration. My husband finished his pluvicto treatment last September
All was well until yesterday. His psa shot up to over 200. And another treatment called xofigo will be administered
His treatment was standard.
First zytiga then nubeca, pluvicto and noe xofigo.
We love our husbands and we are usually their best advocates
Take care of your self and prayer and taking vate of yourself is key. Stress will cause more harm on yourself.
If any others have gone through this regiment of drugs, could you share your experiences.
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@beaquilter - it sounds like a brutal time for both of you. There's nothing that will make it better right now, but make sure you keep taking care of yourself. Going to a coffee shop for an hour every day (for example) will give your body a chance to come down from crisis mode and heal a bit, even if you end up just staring out the window as your coffee gets cold.
And it's ok to post about yourself here, not just about your husband. We're here for both of you. ❤️