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Newly diagnosed with prostate cancer and still gathering information
Prostate Cancer | Last Active: 6 hours ago | Replies (104)Comment receiving replies
Been through the grinder as far as treatments. Diagnosed at 71YO FEb2019 PSA 43 Gleasons 7-9 Bone scan and PET scan RP 5/2019 RT after 2 sessions Two sessions of Lupron, quit both after a few months due to horrible side effects. It is a very bumpy ride filled with controversy and conflicting opinions. Get as many opinions as you can as so many are inaccurate and just wrong. ADT Lupron and others have been a real bitch for myself. As to RP nerve sparing surgery ? Mostly a myth as very few servive RP with those all important nerves that keep you from leaking and the save ability to "sport wood".
Best,
SW http://www.woodlawnmill.com website
Replies to "Been through the grinder as far as treatments. Diagnosed at 71YO FEb2019 PSA 43 Gleasons 7-9..."
I and many others had nerve sparing surgery, it's not a myth - not even mostly a myth or partially a myth. I have no ED and am dry - not a single millisecond of either issue.
I'm sorry that your treatment has been such a tough ride, it's easy to get bitter with such things.
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You say Gleason 7-9. No such thing, if you have one 9 you are a Gleason nine. As a Gleason nine your chance of having reoccurrence is very high. Dropping ADT because of side effects may sound great, but it can make your life very short, and Reoccurrence very soon.
Is your PSA rising? I know people with Gleason nine that have gone on ADT vacations when their PSA was low, due to being on ADT, only to find that they have multiple metastasis within a short time after the ADT vacation.
There are a number of people in this forum that have had nerve sparing surgery and it did work. Even had one person report that they only were able to keep half their nerves, but still were able to get an erection. Results will vary!
Good luck!