Replies to My tumor was just found on a MRCP I can’t see surgeon until later this month….

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Anyone have experience with gastrointestinal stromal tumor (GIST)?

Sarcoma | Last Active: 6 days ago | Replies (98)

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@pptodd

My tumor was just found on a MRCP I can’t see surgeon until later this month. Therefore I don’t have a definitive diagnosis. The tumor is wrapped around the head of the pancreas. Radiology report says it is a gastrointestinal stromal tumor. Anxiety is high. The wait is awful.

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Replies to "My tumor was just found on a MRCP I can’t see surgeon until later this month...."

Colleen Young, Connect Director | @colleenyoung | Apr 14 8:30pm

@pptodd, the waiting is the worse part. I can imagine that your mind is racing in circles. I find it can help to have pen and paper or your phone nearby to jot down your questions as you think of them and then move on to something that distracts you that you enjoy.

Have you started a list of questions for the surgeon?

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