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SOJGREN'S, SMALL FIBER NEUROPOTHY

Autoimmune Diseases | Last Active: 2 hours ago | Replies (46)

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@penn

I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning of skin!! That's getting worse. I hope you are doing well!!!

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Replies to "I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning..."

I have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and tailbone area, pressure from that hurts badly nothing helps! I have a wonderful, caring Pain Management Dr. I have a Pain Pump that's usually helps but never with kind of pain!!!!

Living a life with constant pain, DIFFICULTY moving bowels hurts indy closer spine and legs also. Live like everyday of this LIFE!!!

Is there a lab test for Sjogrens? How do they diagnose it?

@carlybull1
No I'm not doing well, nothing stopps the pain!
My husband is so good to me and I feel so bad for him. My Dr. Gave me Nortriptyline! Side effects, memory is not good and I can't remember where everything goes!! I'm stopping that medication tomorrow. Didn't do anything anyway. I'm a very social person, this life is getting to me! My pets help!!! We have 2 Bengal cats and looking for a dog, 😁 Hope your feeling better by the time you receive this!

THERE IS NO CURE FOR IT AND FOR THE SEVERE CONSTAPATION ADDS TO THE PAIN! GOING OUT IS ALWAYS IN QUESTION!!! I MUST MAKE MY HUSBAND HAPPY, I TRY VERY HARD! HE IS WONDERFUL TO ME!

ANA, YES!! PAIN!!!

Sorry to say, so far nothing! helps!!! Warning, my Neurologist had me taking Nortriptyline, side effect!!!! Memory loss! I feel so different, It's terrible! I was told that will go away!!!! WHEN???? THE DRUG DID NOTHING FOR ME EITHER!!! SO UNHAPPY. PAIN!!!!! WHEN WILL THIS FEELING GO AWAY??????