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@alexandra24

Hello all, I have been diagnosed with adenoid cystic carcinoma of the minor salivary gland. It was diagnosed by biopsy back in February and I am waiting for treatment now. It’s in my sinus region and they don’t think they will be able to get clear margins as is too close to the skull base. Has anyone else been in this situation of not being able to get clear margins in surgery and if so did you end up having the surgery or just radiotherapy? We have had 50:50 responses on whether it’s worth removing as much as possible/debulk before radiotherapy or just do radiotherapy alone (although previously told alone wouldn’t do much). Just wondering what experiences people had and whether thoughts vary around the world? Thank you, nice to be a part of this group

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Replies to "Hello all, I have been diagnosed with adenoid cystic carcinoma of the minor salivary gland. It..."

@alexandra24, have you decided on your treatment path? What has your cancer team suggested? Did you get a second opinion?