Uterine Cancer with brain metastasis

Welcome to Connect, Mdotsie! I'd like to connect you with fellow Connect members, so I'd like better understand they type of cancer you have.

Are the 2 brain tumors a result of cancer spreading (metastasizing) from a cancer elsewhere? If yes, which type of cancer?
Or
Do you have brain cancer that has metastasized elsewhere? If yes, which type of brain cancer?

@mdotsie, Trying to resume normal life with vertigo is challenging, I'm sure.

I wonder if it would be worth while to ask your Neurosurgeon about consulting in Physical Medicine and Rehabilitation? or ask if Vestibular rehabilitation is something that you would possibly benefit from?

As Colleen commented above, more information about your brain cancer will help us put you in touch with other members that have experienced similar situations.

I had uterine cancer in 2008 and the metastasis is from that. (I also previously had métastases in a lung, my bladder, my ribs)

I've talked with my neurosurgeon. The type of vertigo I have is not vestibular, It is directly a result of cerebellar cancer. I had radiation both before and after the actual brain surgery and she thinks the necrosis from that is causing irritation that leads to vertigo. As the scar tissue is being reabsorbed into my system the vertigo is improving very slowly. I've been to physical therapy to learn techniques for balance but the fact is that every day when I get up I am immediately feeling as if I'm on a ship in a storm at sea. It is exhausting to live with. It may continue to improve but right now I find myself unable to live a "normal" life and do the things I'm used to. My hope is that there are others with a similar experience to share my feelings with. Maybe I can learn something about coping with this that I haven't thought of before.

@mdotsie I am going to connect you with memebers @claudia11 @msfrank04 @humminbird1963 and @overcomer11. Can any of you enlighten mdotsie as to how one can cope with vertigo symptoms?

Can you tell me if the physical therapy techniques taught were helpful throughout the day? Is it in the morning when you wake that you feel the worst?

@mdotsie, I send you warm wishes that you are able to find some relief or something that will help you cope with this debilitating effect from the necrosis.

Thanks. My vertigo symptoms start as soon as I get up and never let up all day. I can get around with a cane or a walker but I haven't found a way to do much that requires even sitting up for very long. I'm an artist and I don't have the stamina to deal with constant vertigo and produce artwork. I guess what I'm hoping to find is how to do any kind of work while coping with constant vertigo, if anyone has found a way to do that. I also have a vision problem where my eyes don't"track" as the ophthalmologist put it, but I am learning to cope with that even though I read more slowly and really have to concentrate to avoid slipping into double vision. Most days, if I am too active, I get nausea and often vomit, just like seasickness. I've tried medications and bracelets and they are somewhat helpful but some days even brushing my teeth causes so much head movement that I have nausea from it. If anyone else has these symptoms and is coping better than I am, I would like to hear about how you do it.

Hi @mdotsie,
I just wanted to check in today to see how you are doing. How is the vertigo?

I thought you might want to connect with @kate123 who writes about her experience with uterine cancer here:
- Endometrial Carcinoma: Rare, aggressive, hard to treat but don't worry http://mayocl.in/2jVCoyu

My wife just had a endometrial tumor removed that me Metastasize to the brain. Looking for some direction and advice and referrals as this is extremely rare. I hope someone can help.

Welcome to Connect, @stayinghopeful. I'm glad you found us. I @kate123 and @mdotsie will return to share their personal experiences with endometrial cancer with you. You mention that you are looking for referrals. Do you mean referral for a second opinion? If yes, I'd like to invite @vsinn2000 to share about her experience at Mayo Clinic Cancer Center where she is being treated for a gynecological cancer.

StayingHopeful, will your wife be getting treatment for the brain metastasis? Has she been referred to a palliative care team?

She’s had the tumor removed and is scheduled for stereotactic radiation surgery on 1/12. She has no cancer anywhere else. We are looking for some direction as this is very rare. 2nd opinion or any suggestions as to treatment is what we are after. Have heard her cancer might respond to keytruda but the chemo oncologist says chemo and keytruda are not shown to be beneficial at this time as there is not evidence of any active tumor right now.