← Return to CGD (Chronic granulomatous disease): Is BMT next?

Discussion

CGD (Chronic granulomatous disease): Is BMT next?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Apr 8 1:58am | Replies (4)
Comment receiving replies
@loribmt

Hi @eagle1903 Chronic granulomatous disease, or CGD, is a genetic condition where white blood cells are unable to protect your son’s body from potentially harmful bacteria and fungi. This leaves him susceptible to serious infections throughout his life.
https://www.mayoclinic.org/diseases-conditions/chronic-granulomatous-disease/symptoms-causes/syc-20355817
When the condition is severe, doctors will suggest a bone marrow transplant. This is done because your son’s current immune system is basically defective. It can no longer protect him. By having a donor with a 90% match donate stem cells for your little boy, that healthy person’s immune system will take over the job of protection. This is the only potential cure for your son. If it works as intended, he could avoid years of being treated with long term antibiotics and potentially live a full and happy life. I’ve had a bone marrow transplant myself for a different disease. And it gave me a second chance at life 6 years ago.

While the transplant process isn’t easy, it can be worth the positive outcome. I’m sorry your little boy is having to endure all these illnesses. It isn’t fair for little kids to suffer. But fortunately there are treatments which can offer hope for a future. What are your concerns for having the transplant?

Jump to this post

Replies to "Hi @eagle1903 Chronic granulomatous disease, or CGD, is a genetic condition where white blood cells are..."
eagle1903 | @eagle1903 | Apr 7 12:09pm

First of all, I wish you a speedy recovery.
Thank you very much for taking me into consideration and showing interest.
The diagnosis and transplant process were very fast for us. This also makes me nervous. We are slowly getting over the shock of such a situation and I am doing research in this process.
You are a very good example who has successfully undergone a bone marrow transplant. If it does not upset you, can you tell us about the process?
Some articles say that it is possible to live for many years with drug treatment, but as you said, the definitive solution is bone marrow transplant, even though it is a difficult process. We are afraid of the complications that may occur during this process.
Thank you very much for your interest.
I wish you a healthy and beautiful life❤️

VIEW AND REPLY