Connect
Comment receiving replies
Hi Chris, there is no epilepsy that runs in or family. He began having grand mal seizures 3 months after taking the vaccine in 2021. He is on Keppra and Depakote but still has occasional seizure. His neurologist has told us that 1 percent of the world’s population has developed seizures after getting the vaccine. He was told by his work that if he didn’t take the vaccine, they would have to let him go. That place is no longer in business. We have been to 3 different neurologist’s that have told us the same percentage. We have changed his diet to a more keto diet. He had a tall glass of orange juice a week ago and had a seizure right afterwards. I read that the high sugar and ph content can bring on the seizures. Looking for any help. Has anyone tried spike protein detox or methylene blue? I heard these might be able to help. Thanks for your concern.
Replies to "Hi Chris, there is no epilepsy that runs in or family. He began having grand mal..."
Connect
Hi @tch
Unfortunately, I have heard other people being diagnosed with epilepsy after the Covid vaccines.
As @methel has well pointed out, I recommend that you take your son to an epileptologist. It has made a huge difference in my epilepsy treatment since the diagnosis in 2019. The first two years after the diagnosis, I went to different neurologists and psychiatrists, having struggled a lot with the treatment prescribed. I was even considering surgery after I discovered that I have mesial temporal lobe epilepsy in 2020, which is highly refractory (I do belong to the 1/3 of patients who have not much success with medications to control seizures or do not tolerate the meds well). Thankfully, I went to see a second opinion of a neurosurgeon who said I should explore other options before surgery, recommending that I see an epileptologist. An epileptologist will treat his or her patients much more individually and see what works the best for each patient. The Epilepsy Foundation has a 7/24 support line and could help you find an epileptologist who is closest to your place. I paste here the link: https://www.epilepsy.com/247-helpline.
Getting oneself educated on epilepsy has been something that has also helped me a lot in my journey. Through education, I could understand myself better and report more exact information to my doctor. Some good sources of education on epilepsy are The Epilepsy Foundation and Cure Epilepsy. Both have very good materials. I have also learned to understand what my triggers for seizures are. A book that helped me a lot was this one: https://www.amazon.com/Taking-Control-Your-Seizures-Treatments/dp/019933501X
I could greatly reduce my seizures by discovering my triggers and managing them. Triggers are very particular to each person.
I have heard of methylene blue which was once recommended to me by a neurologist with an integrative approach. My advice, take care with those approaches and try to get a good epileptologist to help your son.
All my best to you and your son!
Chris (@santosha)