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National Jewish Center Visits

MAC & Bronchiectasis | Last Active: 5 days ago | Replies (33)

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@doberdoo

This protocol is awful. Why go if they are not going to share results as the tests are done. It does not allow for questions with the doctor on what it means and treatment options. And no training on anything is preposterous. I am now rethinking booking a visit there. They sound just as bad as my current one. I thought NJC was the best in the Nation. Any advice on where I should go instead. What is the top ranked center in the US for pulmonary disease

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Replies to "This protocol is awful. Why go if they are not going to share results as the..."

"@doberdoo I accidently replied this answer first to another rather than to you, so sending it to you now.
I wrote what I wrote to help one to be alerted to what to ask for and stay on top of communication if going to NJH or any medical facility. I was suggesting that we need to be aware of helping ourselves in staying on top of communication, which in many situations is that way even with lawyers and other professionals in order to help oneself. It was well worth going to NJH for me due to all they test you for and to understand you as a patient and your systems. As I said they do show you how to use the Aerobika etc. etc. I liked my lead doctor, as well.
No it was not awful, overall all went smoothly and everyone was very nice.

Again, they did share the tests when they were done, it was just on the last day for me. It just was overwhelming for me hearing about the tests on the last day and I didn't know and fully understand enough about what the tests and what it all meant.

Please understand it was well worth it for me to go. Remember I said one other person on this site had communication each day about the tests.

Again, I was alerting Jill to what one one might want to request and ask for.
There will never be an absolutely perfect situation no matter the type of involvement, be it medically, home remodel, car repair etc. etc. etc.
Barbara

I was at National Jewish for a week. I received so many results from the tests that they were almost an inch thick in hardcopies. Two doctors were there for my exit interview i.e. Dr Daley and Dr. Eddy, at which time I could ask questions. It is strange that different people have such different experiences.