← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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@katgob

Lori,

I busy day it was Friday!! At 7:30am i started in one building for my CT chest scan. Across campus, i had to drive due to time, for my blood test. From blood test down the hall into the previous building most work was in to the BMB office. I love this newer part in the hospital as it is near the "makeover department". At this point i thought i would be late. Nope. All on time!!! My BMB surprisingly was not by my favorite PA. She had done it 3 times. I had not remembered she is off Fridays. This time I got another PA! His name was Rigoberto!! I asked him when he came in the room if he was completing my procedure. He said yes. I said ok. As long as you have done this a few times. Of course he has. His methos was interesting. He used the left side of my hip. My other 4 were on the right. He said he could see the scar map. Not bad he said just interesting. As he covered this with me as he went, he talked though the lidocaine and the other item he used to clean the area. As he was going to insert the 1st needle, he let me know when he was moving the needle in to get the sample. Then moving in with the other needle to get in the bone. I did not feel much beyond the pressure he talked about which was like my experience with the other 4. Because i am in the research study he said they had prior phone calls reminding them they needed extra product for the 1-year mark for the research.
Done with that i headed over to the medical diagnostic. I had my echo then about 20 minutes later my pulmonary test in the "box". The Dexa scan was in the new Hope Plaza building. Out of all these, By the time i talked to the NP, I was told my heart is good, the pulmonary fellow, who completed the test said my breath pattern is very good and to him the results are very good. The CT scan results show if anything may be brewing.
I got a break then to go get my French fried from the cafe. Done with that and a couple thousand steps to get there and back, I had my drs visit. I saw Hannah the NP. She looked right away and said you look great!!!! You look like you have had nothing wrong, ever!!! My cholesterol HDL is a bit height. She said do not worry right now. I have not had those numbers checked since my cancer journey started in 2021 July. All my other blood numbers are right in the middle. One a bit high, but no worries to them. She said my Iron is often 100, 200, 500, 00 for transplant patients. She said yours is 88!!
My next appt is later in the day on the Bone Marrow transplant reunion day on May2nd. I also will be contacting the primary Dr's office i went to when i first found my breast tumor. I checked with my friend who housed me for my transplant and that dr is still in business, still in my insurance plan and the PA Christine is still there. Cance care and bone marrow care at City of Hope and Cedars. Primary Dr for the generic visits. I am done with "active" care. Follow-up is where i am at.
Almost, waiting for the next results and the BMB chimerism test results in a week or 2.
Back to work in person Tuesday. As long as my note comes from the doctor. We have four days to finish packing our office. I expect most has been done by the students, except my area.

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Replies to "Lori, I busy day it was Friday!! At 7:30am i started in one building for my..."

Happy Cellabration and Re-birth day this Wednesday!!!! Yay! Congratulations and thrilled to hear your wonderful health update! May God continue to bless you, one day at a time, feeling good and grateful!

💗
Mary

Hey Kat! Isn’t that first year followup appointment a bit mind blowing? It’s a time of for reflection of achievement! You’ve come so far in this past year, met so many new people, gained a new vocabulary and added yet another major experience to your book of life!

At the time of transplant, it’s difficult to imagine life at the post 1 year+ point. So much transpires over the first weeks and months. After that it’s usually a slow, steady progression back to normal, or new normal. I know some people balk at the term, ‘new normal’. But really, we continue to grow and change over our lives anyway.

You’ve been the poster child for how a BMT should go right from the beginning, Kat. You worked like the dickens to make this all possible with finding a caregiver and the logistics behind being absent from home for several months.
I recall telling you last year, that someday you’ll be the guiding light for others going through this challenging time…and you are. As mentor for this group, I’ve come to rely on you as a fellow cheer leader and beacon of hope for others with your positivity.

Going back to work tomorrow?! Kat, wow, that’s a giant leap for you. I know you’re ready and it will feel liberating!! Promise I won’t be a mother hen but wanted to plant the seed of “listen to your body”…rest if you need to! Wow, tomorrow will be like the first day of the rest of your life! 😁

Echoing @mary612 in wishing you, Happy Cell-aversary and Re-birth day this Wednesday!! 💕