← Return to Post viral syndrome peripheral nerve hyperexcitability
DiscussionPost viral syndrome peripheral nerve hyperexcitability
Neuropathy | Last Active: 15 hours ago | Replies (21)Comment receiving replies
Replies to "Only checked my b12 it was supratheraputic at like 1900. Had been supplementing for 3 months..."
I was low on B12 and diagnosed by neurologist (#2) with B12 deficiency based on my first test months earlier, since he said after starting supplement, the value is then skewed too high. Neurologist (#1) had ordered MRI, EMG & some labs for tingling, numbness, bitter taste, fasciculations, internal vibrations, etc. Normal results, referred to rheumatologist for autoimmune. Abnormal ANA. After B12 had burning skin, paresthesia, continued bitter taste, smell/taste disorder and long covid by ENT. Since had lingering congestion, phlegm, runny nose. Unable to take Gabapentin due to blurred vision. Occasional Klonopin short term. Anxiety and health anxiety. Was convinced I had ALS, PD,….
I found a great therapist and considered meds, but never did take Lexapro. Talk therapy worked great for me. Focused on letting go of things I can’t control.
Saw nutritionist and got on healthy eating plan.
Joined gym and began daily workouts. Lost almost 100 pounds. Got a new insulin pump and brought my a1c down substantially.
I still have some symptoms, which could be permanent, but I’m stronger, braver and happier than I’ve been in a long time….maybe ever! I think it’s because I am so grateful for the good health I do have. There are people around here who are very sick…..it’s had a big impact on me. Life is grande and I’m very fortunate.