← Return to Cu-64 Dotatate PET results show no malignancy. What’s next?

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Hi all, hoping spring is good and well for you.

I’m circling back to my post with an update. Recap : I had emergency surgery for a blockage and a primary 1cm 2% low grade stage 3 spread to 1/3 lymph nodes removed. December 10, 2024.
Surgeon fixed the blockage and poked around while he was there and found my tumor and performed a small 6cm small bowel resection. He had never seen this before and did not think it was cancer. I went to NETs specialist in Portland, Oregon and was given a choice to watch and wait. (Not getting any younger at nearly 52 female athlete quite healthy otherwise. Tolerated the bowel resection in December very well.) Alternatively to the waiting game, I was offered a surgery to, at minimum, remove 9 more lymph nodes and to visually and physically inspect my small intestines. All of it. And check out my liver. If he finds anything he will remove it if he can. Including gallbladder as a preventative because if he finds more I will be on one of the butt shots which can bugger up the gallbladder. All scans so far (CT and Copper PET) show everything is clear. CgA and 5HIAA normal. Long story longer, on 4/16/25 I am going for the surgery at OHSU. I’m not a watch and wait person. Don’t try and talk me out of it! lol.

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Replies to "Hi all, hoping spring is good and well for you. I’m circling back to my post..."

@niffenhobbin, I appreciate the update. When will you have surgery?