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Protocol over person -The Quiet Tyranny of Standardized Care
Prostate Cancer | Last Active: Apr 7 7:18am | Replies (27)Comment receiving replies
Yes, we wanted to be very aggressive when he started treatment for his prostate cancer … though stage 3 it was assumed to be micro metastatic with a PSA of 46.6 and Gleason 9 .
He had radiation and he was on Zytiga for a year, with Orgovyx, until his aortic root aneurysm started getting bigger and his BP became more unstable..
His oncologist is very neutral regarding treatment plan … I don’t think he expects a cure anyway.
Now he has a cardiac team at Mayo and he will be scheduled for open heart surgery sooner than later.
Cardio doctors don’t want to advise him re; ADT risks before, during and after surgery . Oncology doesn’t know enough about cardio impact of ADT to advise. No one recommended that he get off Zytiga… even the Oncology cardiology doc.
We made that decision.
At this point we think his heart will kill him before the prostate cancer.
We are also getting a second opinion with a different oncologist.
Replies to "Yes, we wanted to be very aggressive when he started treatment for his prostate cancer …..."
It's a hard place to be — I understand that. Ideally, you'd get the cardiologist and oncologist together in the same room to discuss things with you and each-other, but sadly, with modern caseloads, that might not be likely. It's still worth asking, though (even a Zoom call?).
I hope things work out.
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Mind boggling. I am in same boat. I had 9 bypasses 13 years ago. I am not exactly the poster child of cardiac health. Coordinating oncology with cardiology has been a full time job. If only one of them would care… the stuff that scares me is the ADT regimen. I am on it for 18 months, but I might stop at 6 and take my chance.