Why was I granted a visit and then denied with no reason?

I am 51. She is 21 within the Lehigh Valley Hospital network. We have seen everybody. It has been a nightmare woman. I said I think you’ve been misdiagnosing me. They never helped us again. Continue to say x-rays look fine although they x-rayed every single part of my body. Because I was insisting on a parasitic infection and you can see it what was happening and with my labs and with my stool and he said it’s not that I don’t believe you, but my hands are tied. They pushed me out of the system, I’m telling you I watched it happen. The whole community did They did not want to acknowledge parasitic infection.

How do you continue to tell someone something is not wrong with them when their joints are three times a size they should be when they have to quit work. I was an administrator for Home Health company and Nurse very productive person in the world. They watched me deteriorate and would not even give me an antibiotic once I said you’ve been misdiagnosing me. They never touched me again, but ran me through the wringer for a year. . They never touched me again, but ran me through the wringer for a year over 50 doctor visits and constantly telling me nothing’s wrong. The second I went to a functional medicine doctor. I was diagnosed immediately with anaplasmosis and babesiosis, but had very late treatment.

Had a similar experience here . Made an appt with a spine surgeon for a 2nd opinion on previous failed spinal surgery. Once surgeon heard about previous surgery he said"Go back and see first surgeon (he ruined my back spondylolisthikes) and he is a great guy"" and if my office staff had known about previous surgery they would have never made your appt!!!!! No further discussion was made unfortunately it is a big club and they all ;protect each other

As a disabled veteran I can tell you that you are correct. I have to use Community Care since I live 100 miles from my main VA hospital and every time I want to see a non VA doctor I have to go through Community Care and they find a VA participating doctor and help me set up an appointment. It usually is within 1 week that appointment is made.

Thanks for your help, Rico

@bella13 if the medical community isn’t helping you and you feel you’re being treated unfairly consider proving them wrong by seeing a psychotherapist. So if they can show that you are sane and simply suffering they can then have a new direction of investigation to follow.

@bella13 I am sure what you are going through is difficult. The problem with Lyme disease and the various co-infections that can come with it is that there are not a lot of reliable tests to confirm an infection, and different organisms of infection may require different treatments. With medicine being evidence based, that leaves doctors not knowing what is wrong or what to do. This is very controversial. Science and medical knowledge has not caught up with the problems that exist and until it is widely proven and accepted, a patient is left with an "unknown illness". ILADS is a group of Lyme disease specialists and they are criticized by conventional doctors because they treat patients based on symptoms and there may not be reliable tests that can back up a diagnosis. Some claim they are too aggressive or that treatments are not appropriate, but they do help Lyme patients.

I did some searching and I was able to find some resources for you for Lyme and associated disease information that you mentioned your doctor thinks applies. I found that Columbia University Irving Medical Center has a Lyme and Tick Born Disease Research Center. You can find them at this link. https://www.columbia-lyme.org/

I found this video from Columbia about a book they promote, but the video also has some specific case information and is worth watching. It starts as a simple book talking about perceptions about Lyme, but get past that.

This lab is recognized for accuracy of testing. The old standard Western Blot test can miss a Lyme infection. Please also see the video for Columbia that explains why antigens tests are not very accurate, and how they tested spinal fluid instead.
https://igenex.com/
https://igenex.com/the-igenex-advantage/
https://www.columbia-lyme.org/
https://www.lymedisease.org/
https://www.ilads.org/
https://www.globallymealliance.org/
Scroll in this document to find suggested treatment protocols.
https://www.idsociety.org/practice-guideline/lyme-disease/#null