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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 6 days ago | Replies (1096)Comment receiving replies
I am 63 and have had a MGUS caused by an M protein elevation which causes raised immune system activity because it is tricked into thinking something needs to be destroyed (diagnosed about 15 years ago). The result is progressive destruction of Myelin sheath and nerve due to the immune system attack. I have feet numbness some leg issues and minor numbness in both arms and hands.
I still have strength and balance. My diet is predominantly healthy. Alcohol and sugar cause inflammation which temporarily elevates the side effects.
My neuropathy is incurable so I manage my health and exercise to give me the best quality of life I can achieve.
I am exploring Rituximab and previously was in a trial for Calquence.
Anyone with neuropathy needs a solid partnership with a neurologist and a hemotologist for a treatment plan IMO.
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I have Peripheral Neuropathy, possibly due to kidney disease, yet am a three-year transplant recipient. i have been prescribed Lyrica, divalproex, velafaxcine, and recently Buspirone. the Lyrica has worked the best, yet last year, I started experiencing pain at bedtime that disrupts my sleep. I'm under the care of a pain clinic at Emory, and it seems we are going down the list of meds. We discussed nerve stimulation behind the knee, which involves surgery and gives electrical impulses to trick the brain. Has that been something you have explored?