So true! Really complex what we are dealing with and short of our very own Dr. House to put all the pieces together we are hammering together a combo of self directed care with the best medical experts we can find, plus compounded interests from fellow patients in support groups, phew! it's a lot!! Oh, and all the myriad differences of how these diseases present in so many different individuals. You bet, I'll circle back to you. Generosity of sharing experiences makes this group valuable. I was able to identify most closely with your descriptions and it feels like a missing piece of my puzzle. Let's definitely stay in touch.