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Pacemaker & ICDs: Introduce Yourself & Meet Others

Pacemaker & ICDs | Last Active: 1 day ago | Replies (70)
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@jc76

@jackiet
Be patient. It takes some time to program your Pacemaker to what is best for you. This will go on for all the years you have one.

I have had a Boston Scientific since 2006. I am on my 3rd one. I go through constant changes to my ICD/Pacemaker programming based on issues I bring up and or shocks.

I do not use the exercise mode for the reason that I did not like the feeling.

If you have a EP that is a specialist cardiologist with electrical issues of your heart. Talk to them about your exercise and what you want.

We on MCC do not know your medical history, the reasons you got a Pacemaker and thus we should not give you medical advice, just our experience. Your questions are good but should go to your EP. Have you told your EP what you posted on MCC?

I am a patient at Mayo Jacksonville. We have a portal system that I can contact my EP (as well as all my other doctors) and send messages and get answers. It is a great benefit.

I have a home monitor system that can do manual checks of my ICD/Pacemaker and a program to do a check every 3 months. Once a year I go into Mayo for a complete check along with wire checks, etc. I can go in if needed for checkup and tune up if needed.

But I suggest you let your EP know what you are asking about to help with your exercise routines.

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Replies to "@jackiet Be patient. It takes some time to program your Pacemaker to what is best for..."
jackiet | @jackiet | Apr 6 4:00pm

Thank you @jc76. What is interesting about your mentioning the need for patience is the fact that I was never told that they could reprogram my Pacemaker. Even when I told them I still had bradycardia symptoms after the PC was implanted (over four years ago), they would not sign me up with a doctor to have that looked at. The cardiac EP who implanted the device did not grant me a follow-up appointment after the surgery. I did not have that option. I wonder how many other PC patients have had that kind of experience..... I guess you did not. You were fortunate.

"You do not use the exercise mode for the reason that I did not like the feeling." They had my PC programmed at the exercise mode. I did not at the time of implantation know that, of course, and did not have any control over it.

Yes, when I finally found an EP who would speak to me about it I told him everything. That is when I started to learn about all these things. Yes, there are patient portals I use. Yes, my PC is checked every three months just as yours is.

I apologize for not getting the post you responded to tied to my previous posting, which got lost somewhere. As I mentioned, I seem not to have figured out all the ins and outs of how to post and review posts on the Mayo Clinic Connect site. I will try to figure it out.

Thanks everyone.......

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